Kendra Gottsleben



Canadian MPS VI Patient Symposium

This past weekend I traveled with my best friend from college to Toronto, Canada for a speaking engagement.  We were there to attend the first ever Canadian MPS VI Patient Symposium, held by The Isaac Foundation.  For me, this particular opportunity was another one for the books!


For years I have admired Andrew McFadyen and The Isaac Foundation for all they have done and strive to do for Canadian families dealing with MPS.  One of my bucket-list items was to one day meet the McFadyen family, and let them know how incredible I think they are.  It is people like Andrew that create positive changes in our world, and inspire others to join in the fight. His passion and dedication is infectious — you can’t help but want to do more when you’re around him.  Naturally, when I received a message from Andrew asking me to speak about my journey with MPS, I ecstatically said yes!


Currently, there are only 14 known cases of MPS VI in Canada.  At this event, I was given the opportunity to speak to several parents of the young children with MPS VI.  I focused my presentation on how I haven’t let my condition stop me from reaching my dreams.  For me, it’s an unbelievable feeling to know that I can help them see that an MPS diagnosis doesn’t mean the end of the world.  While patients with MPS may face obstacles that others may not, there is so much they can do and achieve!


I had an absolutely amazing time, and I am so grateful for the honor given to me to speak at the Canadian MPS VI Patient Symposium.  Once again, I offer a heartfelt thank-you to Andrew and The Isaac Foundation!


Kendra Preparing To Introduce Dr. Harmatz


You are just like me I m also mps patient

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